SciELO - Scientific Electronic Library Online

 
vol.23 número2Escolha profissional na adolescência: a família como variável influenciadoraAspectos psicológicos de uma gestação de alto risco em primigestas antes e depois do parto índice de autoresíndice de assuntospesquisa de artigos
Home Pagelista alfabética de periódicos  

Pensando familias

versão impressa ISSN 1679-494X

Resumo

AFONSO, Tatiana; CUNHA, Katiane da Costa; PONTES, Fernando Augusto Ramos  e  SILVA, Simone Souza da Costa e. Maternal perception about child care with cerebral palsy: the importance of support. Pensando fam. [online]. 2019, vol.23, n.2, pp. 177-190. ISSN 1679-494X.

This research aimed to understand the perceptions of mothers of children with Cerebral Palsy (CP) about the daily care. Thirteen mothers of children diagnosed with CP aged 0-12 years that living in the metropolitan region of Belém-PA were interviewed. The study was approved by the ethics committee of the Institute of Health Sciences of the Federal University of Pará - ICS, obtaining a favorable opinion (number 473.140). The data were analyzed under the inspiration of Grounded Theory, generating a main category dedicated to the following codes: lonely practices, practices (fear of diagnosis, seizures and future), support (lack of guidance) and support (professional care). It was concluded that the management of practices and support led to different trajectories: those in which mothers received support and those less supported, in this, the trajectory was marked by ruptures and feelings of loneliness.

Palavras-chave : Cerebral palsy; Mothers; Child care; Support network; Grounded theory.

        · resumo em Português     · texto em Português     · Português ( pdf )

 

Creative Commons License