Resumen

OLIVEIRA, João Antonio de; OLIVEIRA-CARDOSO, Érika Arantes de  y  SANTOS, Manoel Antônio dos. Caring for children and adolescents after bone marrow transplantation: mother's experiences. Vínculo [online]. 2020, vol.17, n.1, pp. 25-51. ISSN 1806-2490.  http://dx.doi.org/10.32467/issn.19982-1492v17n1p25-51.

In Bone Marrow Transplantation (BMT) of children and adolescents, the mother is usually the companion during the hospitalization period. In assuming this role, she is exposed to a series of stressful events, in addition to dealing with the risk of losing her child. This study aimed to understand how mothers experience the care of children and adolescents submitted to BMT. This is a descriptive and exploratory research, with a clinical-qualitative approach, with a transversal cut. Six mothers participated, aged 39 to 49 years. For data collection, a semi-structured interview script was used. The individual interviews were audio recorded and transcribed in full, and the contents were subjected to thematic analysis. The results indicate that mothers experience, on the one hand, the anxieties related to the uncertainties that BMT implies and, on the other, the perspective of healing, which feeds the hope of saving the child's life, even with the long way to go. Mothers seek to restore their strength and preserve their psychic balance through the social support network and the attachment to faith, which characterize the most used coping resources. Investigating care from the mothers' perspective allows to know how they understand and deal with the treatment of the child submitted to BMT, which can favor the development of intervention strategies to be offered by the multiprofessional team.

Palabras clave : bone marrow transplantation; mothers; children; teenagers; caregivers.

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