Abstract

MADEIRA, Thaísa dos Santos; OLIVEIRA-CARDOSO, Érika Arantes de  and  SANTOS, Manoel Antônio dos. Anticipatory grief of the family caregiver in hematopoietic stem cell transplantation. Est. Inter. Psicol. [online]. 2020, vol.11, n.2, pp. 167-197. ISSN 2236-6407.  http://dx.doi.org/10.5433/2236-6407.2020v11n2p167.

This study aimed to know the perceptions and experiences of family companions facing illness and transplantation of hematopoietic stem cells (HSCT) in light of the theory of anticipatory grief. This is an exploratory study with a qualitative approach, in which 11 relatives participated. The individual interviews were organized by thematic analysis and interpreted at three contextual levels, involving intra-psychic, interactional with the patient and family / social changes. It was found that the family member experiences feelings and emotional reactions consistent with the bereavement process. Changes in patient interaction occur from the earliest symptoms and intensify with the need to provide comprehensive nursing care during transplantation. Transformations in family dynamics occur in response to the loss of social, occupational roles and their financial impacts. Moreover, the suffering experienced by the caregiver during this process is not validated, either by the family or by the healthcare providers, as the companion is required to be an unshakable source of support.

Keywords : hematopoietic stem cell transplantation; bone marrow transplantation; caregivers; anticipatory grief; emotional states.

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