Abstract

ROOKE, Mayse Itagiba  and  SILVA, Nara Liana Pereira. Resilience Trajectory in Families of Children with Down Syndrome. Rev. Subj. [online]. 2021, vol.21, n.3, pp. 1-13. ISSN 2359-0769.  http://dx.doi.org/10.5020/23590777.rs.v21i3.e8882.

A Family that experiences resilience processes develops vital resources to deal effectively with future challenges, suggesting group stability. This study investigated the trajectory of this construct from the analysis of stress levels, depression, family support, and protective factors in four families composed of mother, father, and at least one child with Down syndrome (DS). The average age was: mothers 40,7 years, fathers 38,5 years, children with DS 15,7 months, and children with typical development (TD) 10,2 years. Home visits were made in three moments during a year. In each meeting, both parents responded to the Lipp Adult Stress Symptom Inventory, the Beck Depression Inventory, the Family Support Perception Inventory (FSPI), and a semi-structured interview. The child with TD responded to the Infant Stress Scale, the FSPI, and the interview. All family members responded together to the Family Protective Factors Inventory. The results indicate that family resilience processes remain stable over time. Depending on the period families were assessed, different associations were found among the constructs. In general, higher levels of stress and depression possibly interfere negatively in the processes of family resilience. In contrast, the greater perception of family support and more protective factors seem to be related to the indicative of this psychological phenomenon.

Keywords : family resilience; Down syndrome; family.

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