Abstract

FORESTI, Taimara; HODECKER, Maísa  and  BOUSFIELD, Andréa Barbará da Silva. Caring from the perspective of family members of people with disabilities: an integrative review. Estud. psicol. (Natal) [online]. 2021, vol.26, n.4, pp.392-403. ISSN 1413-294X.  https://doi.org/10.22491/1678-4669.20210037.

This integrative review aims to understand how family caregivers think about caring for a disabled person. The quest for the studies was performed in the databases Scopus, Web of Science, PsycInfo, INDEXPSI; LILACS and, SciELO. The period that comprises the last ten years of research has been stipulated (2010-2020). After applying the inclusion and exclusion criteria, 19 articles were selected. Data analysis was categorized into five major subjects: (a) Caring and its emotional, psychological, physical, behavioral, and social implications; (b) Caring as solitude; (c) Caring and its practical demands; (d) Caring and coping strategies; (e) Disability caring and representation. The results showed that caring is understood according to the culture and beliefs about the disability, in addition it causes different types of implications for family caregivers, such as discrimination, anxiety, depression, loneliness and, financial difficulties.

Keywords : care; family caregivers; perception; disabled person.

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